身患镰状细胞病的女士庆祝80岁生日，远超预期寿命数十年

1

[1] September is sickle cell awareness month, and we want to highlight this disorder from a fresh perspective.

显示译文▼

9月是镰状细胞病意识月，我们希望从一个新的角度来强调这种疾病。

2

[2] You likely know someone with sickle cell, according to the CDC 1 in 13 black or African-American babies in the US are born with a sickle cell trait.

显示译文▼

你可能认识镰状细胞病患者，根据美疾控中心的数据，美国每13个黑人或非裔美国婴儿中就有1个天生带有镰状细胞特征（通常为良性）。

3

cell disease have a life expectancy more than 20 years shorter than average, but there's some hope, one woman Patricia McGill has defied the odds.

显示译文▼

镰状细胞病患者的预期寿命比平均寿命短20年以上，但希望还是有的，一位名叫帕特里夏·麦吉尔的女性克服了困难。

4

[4] She is among the oldest people living with the disease, early today's Fredlyn Pierre Louis spoke with Patricia.

显示译文▼

她是最年长的患有这种疾病的人之一，今天早些时候，（我台制片助理）弗雷德里林·皮埃尔·路易斯采访了帕特里夏。

5

[5] How was it for you growing up with sickle cell? - Sickle cell wasn't prominent, and maybe people knew about it, but when I was 13, doctor took blood test, and told my mother and me that I had sickle cell anemia.

显示译文▼

你是怎么伴随镰状细胞病一起长大的？ - 镰状细胞病并不为人所知，也许有人知道，当我13岁的时候，医生给我做了血液检查，告诉我妈妈和我，我患有镰状细胞贫血症。

6

[6] Well I started researching at 13, and one of the first things I found out was that most sickle cell patients don't live to be 40.

显示译文▼

我从13岁开始研究，我发现的第一件事就是大多数镰状细胞病患者活不到40岁。

7

[7] I decided that if I was only going to live to be about 30, which is what I thought initially that I was going to live it up.

显示译文▼

我决定，如果我只能活到30岁左右，就像我最初想的那样，那我就要尽情享受人生。

8

[8] For you, what's been the key to live a long and healthy life? - I probably drank a gallon of water a day, and that helped tremendously, and then I got smart enough to get into nutrition, and nutrition has made world the differ, I really think that the nutrition is the reason that I'm still here.

显示译文▼

对你来说，健康长寿的关键是什么？ - 我大概每天喝一加仑的水，这对我帮助极大。然后我变得聪明起来，开始关注营养学，而营养让我变得不同。我真的认为营养是我能活到现在的原因。

9

[9] What advice would you give to other people living with sickle cell? - One of the things I have found over the years that sickle cell people do is hide, they don't want people to know they have sickle cell, I think that's a great mistake.

显示译文▼

你对其他镰状细胞患者有什么建议？ - 多年来，我发现镰状细胞病患者会隐瞒病情，不希望别人知道他们有镰状细胞病，我认为这是一个很大的错误。

10

[10] Because when people understand what you are going through and what's happening to you, they're more apt to⁽¹⁾ be able to help. - And thanks to Fredlyn Pierre Louis for that report.

显示译文▼

因为当人们了解你正在经历的事情和发生在你身上的事情时，他们更容易帮助你。 - 感谢弗雷德林·皮埃尔·路易斯的报道
⁽¹⁾ more apt to：这个短语也表示某事更有可能发生，特别是在描述某人的倾向或习惯时

1

9月是镰状细胞病意识月，我们希望从一个新的角度来强调这种疾病。

显示原文▼

[1] September is sickle cell awareness month, and we want to highlight this disorder from a fresh perspective.

2

你可能认识镰状细胞病患者，根据美疾控中心的数据，美国每13个黑人或非裔美国婴儿中就有1个天生带有镰状细胞特征（通常为良性）。

显示原文▼

[2] You likely know someone with sickle cell, according to the CDC 1 in 13 black or African-American babies in the US are born with a sickle cell trait.

3

镰状细胞病患者的预期寿命比平均寿命短20年以上，但希望还是有的，一位名叫帕特里夏·麦吉尔的女性克服了困难。

显示原文▼

cell disease have a life expectancy more than 20 years shorter than average, but there's some hope, one woman Patricia McGill has defied the odds.

4

她是最年长的患有这种疾病的人之一，今天早些时候，（我台制片助理）弗雷德里林·皮埃尔·路易斯采访了帕特里夏。

显示原文▼

[4] She is among the oldest people living with the disease, early today's Fredlyn Pierre Louis spoke with Patricia.

5

你是怎么伴随镰状细胞病一起长大的？ - 镰状细胞病并不为人所知，也许有人知道，当我13岁的时候，医生给我做了血液检查，告诉我妈妈和我，我患有镰状细胞贫血症。

显示原文▼

[5] How was it for you growing up with sickle cell? - Sickle cell wasn't prominent, and maybe people knew about it, but when I was 13, doctor took blood test, and told my mother and me that I had sickle cell anemia.

6

我从13岁开始研究，我发现的第一件事就是大多数镰状细胞病患者活不到40岁。

显示原文▼

[6] Well I started researching at 13, and one of the first things I found out was that most sickle cell patients don't live to be 40.

7

我决定，如果我只能活到30岁左右，就像我最初想的那样，那我就要尽情享受人生。

显示原文▼

[7] I decided that if I was only going to live to be about 30, which is what I thought initially that I was going to live it up.

8

对你来说，健康长寿的关键是什么？ - 我大概每天喝一加仑的水，这对我帮助极大。然后我变得聪明起来，开始关注营养学，而营养让我变得不同。我真的认为营养是我能活到现在的原因。

显示原文▼

[8] For you, what's been the key to live a long and healthy life? - I probably drank a gallon of water a day, and that helped tremendously, and then I got smart enough to get into nutrition, and nutrition has made world the differ, I really think that the nutrition is the reason that I'm still here.

9

你对其他镰状细胞患者有什么建议？ - 多年来，我发现镰状细胞病患者会隐瞒病情，不希望别人知道他们有镰状细胞病，我认为这是一个很大的错误。

显示原文▼

[9] What advice would you give to other people living with sickle cell? - One of the things I have found over the years that sickle cell people do is hide, they don't want people to know they have sickle cell, I think that's a great mistake.

10

因为当人们了解你正在经历的事情和发生在你身上的事情时，他们更容易帮助你。 - 感谢弗雷德林·皮埃尔·路易斯的报道

显示原文▼

[10] Because when people understand what you are going through and what's happening to you, they're more apt to⁽¹⁾ be able to help. - And thanks to Fredlyn Pierre Louis for that report.
⁽¹⁾ more apt to：这个短语也表示某事更有可能发生，特别是在描述某人的倾向或习惯时

1

[1] September is sickle cell awareness month, and we want to highlight this disorder from a fresh perspective.
2

[2] You likely know someone with sickle cell, according to the CDC 1 in 13 black or African-American babies in the US are born with a sickle cell trait.
3

cell disease have a life expectancy more than 20 years shorter than average, but there's some hope, one woman Patricia McGill has defied the odds.
4

[4] She is among the oldest people living with the disease, early today's Fredlyn Pierre Louis spoke with Patricia.
5

[5] How was it for you growing up with sickle cell? - Sickle cell wasn't prominent, and maybe people knew about it, but when I was 13, doctor took blood test, and told my mother and me that I had sickle cell anemia.
6

[6] Well I started researching at 13, and one of the first things I found out was that most sickle cell patients don't live to be 40.
7

[7] I decided that if I was only going to live to be about 30, which is what I thought initially that I was going to live it up.
8

[8] For you, what's been the key to live a long and healthy life? - I probably drank a gallon of water a day, and that helped tremendously, and then I got smart enough to get into nutrition, and nutrition has made world the differ, I really think that the nutrition is the reason that I'm still here.
9

[9] What advice would you give to other people living with sickle cell? - One of the things I have found over the years that sickle cell people do is hide, they don't want people to know they have sickle cell, I think that's a great mistake.
10

[10] Because when people understand what you are going through and what's happening to you, they're more apt to⁽¹⁾ be able to help. - And thanks to Fredlyn Pierre Louis for that report.

身患镰状细胞病的女士庆祝80岁生日，远超预期寿命数十年

内容